XXY associations and community groups
Disclaimer: Links and PDF’s are provided for your information only, we (XXY.org.nz) bear no responsibility for the information they provide. Seek professional medical advice in NZ before you partake of any medical services/treatments/therapies offered.
Living with XXY
Living with XXY is changing how the world views Klinefelter syndrome, 47 , XXY. Focusing on building community, awareness, and positive traits.
Klinefelter’s Syndrome Association (KSA)
Reported to have some “Excellent parent-level documentation that is easy to read, understand and implement – including a downloadable resource for parents and teachers“
Association for X and Y Chromosome Variations
Australian X and Y Spectrum Support
Great resource with many suitable links.
Australasian Paediatric Endocrine Group
You are not alone.
The map below shows the known number of XXY’ers in NZ
Articles, documents and other information
Below is a list of PDF’s and links click on the link to view the file/information:
- Breast cancer awareness for XXY’ers
47,XXY is one of the most common chromosome karyotype structures after XY & XX. It happens somewhat randomly between 1 in 500 and 1 in 1,000 newborn males.
Technically, being XXY is not rare; however, it is rarely discovered.
We are happy to champion Rare Disorders NZ.