About Us

How We Got Started

Our stories might all be a little bit different but at the heart of things, we’re all touched by the same story. We are or know someone or are the parent of a child with 47,XXY.

Some of us have known all our lives while others learned about our chromosomes as we tried for children or perhaps had a health issue that highlighted the diagnosis.

Our Mission

Unofficially until we gain NZ Charity status our mission is to continue to support each other.

Going forward, we intend:

  • To encourage XXY guys, parents and families to have a network and meet up.
  • To encourage balanced health, fitness and mental wellbeing.
  • To provide success stories and information that shares the qualities of being XXY.
  • To encourage parents, families and friends to become aware of what being XXY really means.

Where are we?

We have an amazingly supportive and social community. If you’re a parent or an XXY guy, we’d love to connect with you – get in touch. 

Here’s a map that shows roughly where known NZ XXY’ers are. The numbers of people and locations change from time to time.

Be inspired and watch this great testimony from New Zealand XXY’er Samuel Pierce as he shares his story.

Our Programs


Conferences & Connections

We would love to be able to send one of our XXY’ers to an international conference each year to give them the experience and also to gain sharable information for our community.



The opportunities in education are massive – a lot of information on the internet is entirely incorrect for all XXY’ers and we would love to share the positives.

Take up a challenge to review how we can help everyone understand the effects of the syndrome better.


Support & Being Social

Between 1 in 500 to 1 in 1,000 are in fact XXY – plain and simple it is easy to feel alone when most of us aren’t diagnosed.

There have already been a few meetups throughout New Zealand, and we are looking forward to meeting you.